Elaine's Dilemma

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My wonderful wife, Elaine, is fighting Stage 3c peritoneal (ovarian) cancer. Although we understand the tumors have been growing in her for as long as a year, the symptoms began in late February and culminated first in two exploratory surgeries that began April 1st. Then a major operation three and a half weeks later, on April 26th, found the tumors. That moment is when this log began.

The posts below are updates I sent out to family and friends while she was in the hospital after the 3rd procedure, on April 26, and then later and more intermittently, from home.

As experienced friends have noted, cancer immediately takes over your life. This site is simply a way for us to document and communicate what we’re going through, and for friends and common travelers to check in with their own comments.

Thanks much for visiting.

Brian

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The Way It Is

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On Thursday Elaine went in for her 4th of 8 every-three-week chemical infusions, a 4-hour exercise involving three very powerful drugs, followed by another 24 hours later. It is a communal event. A group of women sit together, each receiving a specific mixture. Some have been fighting cancer for 10 years or more. It goes into remission, then recurs. The doctors dig deeper and deeper into a limited arsenal to find something the cells will respond to. It is not a pleasant prospect.


A couple months ago I visited close friends, both oncologists, who now live in Truckee, CA, just outside Tahoe. Elaine was just beginning the chemo treatments. Larry told me, “The first round is the worst, because its unknown. After that, people say, “Well, it wasn’t pleasant, but I can get through this. Then around the 5th cycle, they’re literally sick to death of it and thinking, “Oh, just go ahead and shoot me!”

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Learning To Live With It

Dear Friends and Family,

It has been a little more than 6 weeks since the surgery where Elaine’s doctors found her tumors, and about 10 weeks since she first presented complaining of symptoms. Her wounds have healed beautifully. She is strong and her spirits are high. Most important, we’re over the shock, and so we’ve settled into the stark truth that this is about how we can manage a very serious situation over a very long period of time.
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Monday Night, 4/26

Elaine is out of a very big extensive surgery and doing well. She's awake, lucid and, because of a wonderful epidural, not feeling a lot of pain.

There is some bad news that Elaine and I have already talked through. We agreed that this email, which is going to family and close friends, should be open and honest.

The doctors found cancer that was focused in the gynecologic organs but that had metastasized throughout the abdomen. They said that several of the organs were fused together in a mass, and so they did a radical hysterectomy and removed the appendix as well. They said that while they removed the large tumors, there were many smaller tumors that it was impossible to get to.
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Saturday, 5/22

This week Elaine entered an important second stage in her cancer experience: the beginning of her chemotherapy. Monday night will mark one month since a tremendous abdominal surgery. By earlier this week, she was walking 3 miles each day on the beach, and Wednesday she did 4 miles. There is no way to describe her recovery except “spectacular.” Read More...

Sunday, 5/09

We’re just in from a 40 minute walk down onto the beach and back. Even at a less brisk than our usual pace, Elaine covered something more than 2 miles, remarkable when you consider that we’re at 13 days post-op and 9 days post discharge.

Last night, we spent an hour and a half at a 50th birthday party for our great friends Claudia and Giorgio Azzalin who, incredibly, were born on the same day in Torino, Italy and, even more amazingly, were both infused with a lighthearted sense of adventure, warmth and charm. Giorgio, in typical fashion, announced that having Elaine there was the best present of all.


And Friday, Elaine finally had her Foley catheter removed. (A free-at-last moment!). Her urologist was appropriately admiring, noting that she was “way, way out of the norm for recovery.” And when she alluded to her mile-a-day walks, he quipped, “Who DOES that after something like this!” Read More...

From THCB: The Makings of a Great Outcome

Originally Published on The Health Care Blog

Last week my wife and best friend, Elaine, had massive abdominal surgery. We fully expected her to be an inpatient for a week, but she was home in four and half days. To watch her recover was to see what happens when everything converges: the deep knowledge and skills of excellent, humane physicians; a capable, caring clinical staff; wonderful new technologies; and a lifetime of eating right, being fit and tending to one's health.
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Friday, 4/30

Early this morning, Elaine downed half a piece of french toast that would have made a Roman legionnaire shudder, convincing the medical staff that solid food, such as it was, was in her repertoire once again. It was enough for Dr. Swartz, who promptly discharged her.

We gathered up our things, rolled her out to the pickup circle and were out by 9:30AM. Home 45 minutes later, after a shower and a shampoo, she set up headquarters in the bed, then promptly fell asleep from exhaustion. The word “ecstacy” was murmured in there somewhere. Read More...

Thursday Night, 4/29

Following a big surgery, every day is different. Milestones are achieved constantly during recovery, each one significant for what it represents.

After major abdominal surgery, bowel function shuts down. The gold standard proof that the system is rebooting is the creation of gases in the gut that are, well, seeking a way out. Nature really does abhor a vacuum and, today, after 5 days without food - think about THAT for a moment - Elaine's gastro-intestinal tract started up and began to process again.
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Wednesday Night, 4/28

To watch Elaine recover is to see what happens when everything - the deep knowledge and skills of excellent, humane physicians; a capable, caring clinical staff; wonderful new technologies; and a lifetime of eating right, being fit and tending to one's health - converges.

Consider this. Less than 48 hours ago, Elaine had massive surgery: a radical hysterectomy, removal of parts of the appendix, bladder, ureter. Then reattachment of the ureter to the bladder. And much more. In the process, she lost 2 units of blood. She has had an IV drip, but hasn't eaten since Sunday, and until noon today her only fluids since Sunday have come from sucking ice chips.
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Tuesday Night, 4/27

Today Elaine is back with us. She is of course still weak, but the fabulous epidural block has kept her pain to a minimum. She's managed to get out of bed and across to a chair twice, and she's got her wit and her wiseacre humor back. Tomorrow I think she's going to try walking, which is remarkable when you appreciate how traumatic the surgery was. Read More...

Monday, 3rd Surgery, Discovery

Elaine is out of a very big extensive surgery and doing well. She's awake, lucid and, because of a wonderful epidural, not feeling a lot of pain.

There is some bad news that Elaine and I have already talked through. We agreed that this email, which is going to family and close friends, should be open and honest.
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